and so it did. One minute we are eating at Pizza Hut and the next we are being lifeflighted to Dallas Children's Hospital. My ten year old, daughter, Daisy has been diagnosed with a kidney disease. Thank God it is treatable, although extremely serious. We have been learning how to adjust and she will not go back to school until next week.
So, there has been zero times for crafts and fun, but lots of time for praying for my little girl. Now I am thanking God for all the wonderful friends and family I have who have seen us through a rough few weeks.
I hope to be back to blogging before too long.
Daisy is relaxed as she gets ready to go on the jet plane to Children's Medical. She has no idea how sick she is...neither did I. Her blood pressure is 158/118.
Our ride. I have no idea how much this ride will cost us...but, when it comes to your children, one is just so thankful to have this option.
Three of Daisy's brothers and sis-in-law met us in Dallas. They actually beat the plane.
Daisy's kidneys are not functioning properly and her body has gone from 60 pounds to 80 pounds. She is upset how she looks and so her sister, Molly, takes her for a walk and a pep talk.
Daddy Bob sits by Daisy. She is miserable and exhausted from all the needles, doctors, and questions. Daisy hides under her huge stuffed animal, Tiny Jr.
We are released from the hospital. Daisy still looks swollen and looks worse than when we first arrived. I don't feel confident about the situation.
Daisy continues to be swollen and miserable. Her blood pressure is sky high. We end up in the emergency room again, and are told to make our way back to Dallas. Things are not as they should be.
Daisy is put on high blood pressure medicine. The steroids at last kick in at the hospital, and the kidneys start doing their job. Daisy loses twenty pounds in two days! I call her the Peeing Princess!
Below is a picture of Daisy today. She is still not totally 100% and has lost a little too much weight now. She is regaining her strength and I hope she will continue to improve. The name of her disease is Nephrotic Syndrome Minimal Change Disease. God has been good to us and I am so thankful to be home with my daughter. She is a blessing to me and her family!
